CP Pain Education: Co-designing a pain education program for young adults (aged 15- 30 years) with cerebral palsy.
A research team at the University of Sydney are co-designing a new pain education program for young people (aged 15- 30 years) with cerebral palsy
Summary: Pain education provides information and resources to help a person manage their pain. It aims to provide information to better understand pain and contains information to support the person to develop skills and knowledge to manage their pain. In this project, researchers will work in partnership with young people with CP (aged 15-30 years), family members of young people with CP, and service providers to co-design the prototype of a CP-specific pain education program. A prototype is a draft model that outlines the key information to be included. We aim to work together to create a prototype that meets people’s needs and preferences.
Who can participate? The following people can participate: 1) Young people with CP, aged 15-30 years; 2) Family members of young people (aged 15- 30 years with CP); 3) Service providers engaging in client-facing services to young people (aged 15-30 years) with CP. This includes health professionals, researchers, and disability service providers.
What is involved? This research project has three parts. We are now up to Part 2: Online Delphi Survey. Take part in a series of short, online Delphi surveys to help shape a new pain education program for people with cerebral palsy. Across three quick survey rounds (15 minutes each), you’ll rate and prioritise important topics, with the option to suggest new ideas. Surveys are completed in your own time over several weeks. Your input will directly inform the development of a future CP pain education program.
If you are interested or want to find out more information, please click the link or scan QR code